Down Syndrome Support Resources
Click on the topics below to find resources and links to help families, caretakers, loved ones & individuals with Down Syndrome learn about and navigate the resources available.
Find support networks, medical resources, education information, athletic/ recreation resources, financial planning resources and information about other local and national organizations.
About Down Syndrome
Wording References and People First Language
What is Trisomy 21 / Down syndrome?
12 Key Facts about Down Syndrome
Down syndrome is a genetic condition that causes delays in physical and intellectual development. It occurs in approximately one in every 800 live births. Individuals with Down syndrome have 47 chromosomes instead of the usual 46.
It is the most frequently occurring chromosomal disorder. Down syndrome is not related to race, nationality, religion or socioeconomic status. The most important fact to know about individuals with Down syndrome is that they are more like others than they are different.
Down syndrome is usually identified at birth or shortly thereafter. Initially the diagnosis is based on physical characteristics that are commonly seen in babies with Down syndrome.
These include low muscle tone, a single crease across the palm of the hand, a slightly flattened facial profile and an upward slant to the eyes. The diagnosis must be confirmed by a chromosome study (karyotype).
A karyotype provides a visual display of the chromosomes grouped by their size, number and shape. Chromosomes may be studied by examining blood or tissue cells.
Down syndrome is usually caused by an error in cell division called nondisjunction. It is not known why this occurs. However, it is known that the error occurs at conception and is not related to anything the mother did during pregnancy.
It has been known for some time that the incidence of Down syndrome increases with advancing maternal age.
However, 80% of children with Down syndrome are born to women under 35 years of age.
Learn about Down Syndrome, what it is and how it effects individuals.
Down Syndrome Action is a San Diego based 501(c)3 and helps families and individuals navigate the resources available including support groups, early intervention services, disability rights and personal development services.
Raising awareness for Down Syndrome and shining light on the joys and challenges that families and individuals face with love every day.
Resources and organizations dedicated to improving the physical and mental well being for individuals with Down Syndrome.
Resources and organizations helping to further educational opportunities and support the unique learning process of the Down Syndrome community.
Get involved with athletics and recreational activities specifically geared towards individuals with disabilities. From museum events, surf clubs to Special Olympics, San Diego is filled with action packed fun for the Down Syndrome Community.
Find other organizations dedicated to supporting the Down Syndrome community.
Learn about savings plans and financial tools available to families and individuals with disabilities.